This week’s partner organization features The Patient Story! The letter below was written by the Patient Story’s founder, Stephanie Chuang.
Things change fast.
I was diagnosed with non-Hodgkin lymphoma over the phone in December 2016. Like so many others, my family and I started to swim in questions.
How would our lives change?
Where do we go?
The unknowns were endless so we turned to the internet to search for answers. There was so much to try and figure out.
What made it worse was how the information came: medical jargon, statistics, and studies. It made us feel incredibly helpless.
Cue Dr. David Nguyen.
My husband reached out to his childhood friend, now a doctor at University of California San Francisco (UCSF) where I would later get treatment.He came over to our house the night of the diagnosis and told me and my family – in human terms – what might happen and our options. He’s not an oncologist, but his experience as a doctor allowed him to walk us through the next steps.
And that’s why we started the platform, originally named “OneDavid.” We are working to give one “David” to everyone who needs and wants the help – in human terms. The best way to do that?
Through the patient story.
I’m happy to say I’m in remission as of July 2017. I am now celebrating life by dedicating it to our community of cancer patients and caregivers. Big hugs.
For more information about The Patient Story, click here.